On Wednesday, we had an appointment with Dr C. He didn't like that she had so many seizures so soon. Unfortunately, he did say that we're starting to run out of tricks. Right now, Iris is on two medications (Keppra and Phenobarbital), a Chinese herb mix of Gastrodia and Uncaria, and goes for acupuncture every two weeks. None of it has significantly changed the time period between seizures. She's always been between 3-5 weeks. It seemed like the acupuncture was at least decreasing the number of seizures and shortening the post-ictal period when she would cluster. This last weekend it didn't seem to be the case. It feels like we get a brief "honeymoon period" with everything we try before we end up back at square zero.
We're trying one more thing. Dr C wants to try keeping magnets with a gold bead inside Iris' ears. It will constantly stimulate the acupuncture point there. They're a bit like a band-aid with a small, pointed magnet where the gauze should be.
Iris isn't bothered by them at all. They sit right inside and toward the front of her ears. Dr C showed me exactly where they go incase they fall out and sent me home some extra. I think the biggest problem will be keeping the fur clipped so the adhesive can stick to her skin. She already has some fuzz growing in.
Dr C told me if she does have a seizure, I can put a little pressure on the magnets during the seizure. It might help bring her around. If you look closely in the next photo, you can see the magnets inside her ears. They're barely noticeable.
We're keeping everything crossed that this helps. If it doesn't, we're starting to run out things to try. Dr C admitted that he doesn't have a lot of confidence in the magnets because we haven't seen dramatic improvement since starting acupuncture. It's still worth a shot. For now, we're still doing acupuncture every other week, but we'll see how she does between now and her next cluster. At least we're back to a more "normal" state for now.
1 comment:
Dr C sent me home with a prescription for oral Valium to give as needed when Iris starts having seizures. At least that should help interrupt her cycle. I've used rectal Valium before, but that really only helps her if I give it during a seizure. Her seizures are pretty short. Hopefully oral will work better for her.
Other than that, I think we're back to either increasing her meds or adding a third drug. Actually, I sort of feel that if the Valium works and we can keep it to 1-2 seizures every 4 weeks or so, then maybe that's not the worst thing in the world? In May, she's due for bloodwork to check her liver and kidneys, so that will probably be a factor in decided whether to add more meds or not.
Post a Comment